My Reasoning

I had a doctor’s appointment yesterday (with someone that doesn’t know about Mark’s Achondroplasia), and the whole time my heart was beating hard and fast. I knew that I had to tell her about him, and what we were going through but I didn’t know how. She began to talk to me and my body started to get hot and sweaty. My face got red, and I was fighting back tears, so I knew that she could tell that something was wrong. I told her that I might as well tell her now, instead of telling her later, the words left me as I said “Mark has Achondroplasia.”  Her look was surprising but nothing that I haven’t seen before. She then proceeded to give me names and numbers of people that could help.

I could feel my face cool down, along with my body. I have told yet another person about my son, and realized that it just doesn’t get any easier.

We then went to Bruce’s parents house to talk about what happened and things like that. Bruce asked me what I told them about, and before I could say anything I hear Bruce’s dad say “That he is perfect, there is nothing wrong”. I then turned around and saw the look on his face. He genuinely said that and meant every word. I am luckiest girl ever, to have him as my father-in-law. Just to know that having a disorder doesn’t mean that there is any less love in their heart for him. And that makes me so happy.

There have been people that tell me how perfect he is, and that God doesn’t make mistakes. But then you look at their face and see that they are just saying that because they don’t know what else to say. I know that they don’t want to say the wrong thing so they just tell you what they think you want to hear.

I have heard from people, asking me why I decided to tell people about Mark through a blog. My responds to that is easy. One…I have too many people to tell. Two…I want more then just my close friends, and family to know. Three….I don’t know if I could personally tell everyone I knew about it. My emotions have been through the roof lately, and I don’t know how many people would actually know if I had to do all the talking.

I also have to say that if you have questions about my son, don’t be afraid to ask. I don’t have all the answers myself, but I will fill you in the best I can. I have a lot to learn and I feel that I will never be done learning about this, but I don’t want people talking behind my back about my son.

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2 comments

  1. Samantha, I am very glad that you had the courage to tell everyone about Mark in this manner. I think it probably was easier for you to do than personally telling people, because of all the emotions involved. I look forward to these notes keeping everyone updated and there will be lots of questions regarding Mark’s diagnosis. I, for one, did not realize all the medical issues he will face in this first year and because of your posts, I can pray specifically about them. You are right to inform everyone you know about Mark, because people love you and want to pray for Mark and strength for you and Bruce to be able to handle whatever comes along.

  2. Hi Samantha, I must apologize as I am lax in getting to you and telling you how much you and everyone in your beautiful family is in our thoughts and prayers!! We just found out a little while ago thru facebook and your blog since we don’t check facebook much. I, too, agree that he will be perfect in his own way and simply because he is loved by God and so many. We work with Special Olympics and have never run into a family yet who hasn’t said how much more special and affected their family has been because of their child’s challenges and how they know they have touched others, too. Thank God you have God and such a wonderful support system around you all. We, too are here for you and will do better at keeping in touch. My question is we had just seen Mark at Olive Garden not too much after I see he was diagnosed: what was happening with him that brought on the diagnosis? He was perfect then, too! So my next question is when can we get together again? We have Sunday, March 3rd, Sat, Mar 8 and Sun, Mar 9th. We would love to see you guys. Can you text me and let me know as I don’t check facebook very often. Can’t wait to see you guys again! and hold that precious boy.Love and prayers, Laurie, mama Chapman

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