Well today I became aware of something. It came from another mother with a son just like mine. October is Dwarfism Awareness Month. I feel that as a mother of an amazing unique little boy that is it partly my job to inform other people about this rare genetic disorder.
To tell the truth, my heart is pounding and I really don’t know where to start with this post. I want everyone to know that it is Dwarfism Awareness Month just as everyone knows that it is Breast Cancer Awareness Month. However, it is easy to say that Breast Cancer hit home for more people then knowing someone who is a dwarf. But I am making it my mission to get people to know and understand dwarfism.
My little boy is just as amazing as any other little boy. The only thing that makes my son any different from any others is his bones don’t grow the same. He will be short, so. He just wants to be seen as any other little boy. Yes, he may need a stool to reach the sink, or the cupboards.
Update: Mark’s appointment went good yesterday. He got 4 shots yesterday, and a blood draw to check his lead level. Mark measured in at 26 1/4 inches, and 16 pounds 9 ounces. He has a little fever today due to the shots, but he is a trooper.